The goal of FWOL is having the ability to give back to the causes that are not only important to us, but to the FWOL community. It is our strong belief that giving back is an important part of going forward. Through life experiences it becomes clear that everyone has the ability to give back in some manner whether big or small. It is our wish to be a vehicle to help our friends support what matters most to them.
FWOL will forever contribute proceeds to the Scleroderma Research Foundation (SRF), as it has affected the FWOL team on a personal level.
Please let us know what touches your life in a personal way as our ultimate goal is to create a community of social consciousness in an effort to help one another. Visit our “Your Words” page, we want to know what matters to you.
Why Scleroderma Research Foundation:
As a founding member of FWOL, I was afflicted by this disease at the early age of 10 years old. As one of the youngest known diagnosed patients there was little known about this disease, and the effects that it left were both physically and emotionally scarring. Scleroderma is an auto immune disease that affects 75,000 to 100,000 people in the United States. More than 75 percent are women. The affliction of this syndrome lives in the shadow of the family of Auto Immune diseases.
The Scleroderma Research Foundation was founded in San Francisco in 1987 by scleroderma patient Sharon Monsky who lost her battle to the disease in May of 2002. Monsky’s legacy lives on through the organization she founded which is currently chaired by Luke Evnin, Ph.D., managing partner of MPM Capital, a dedicated investor in life sciences. “We continue to pursue Sharon’s vision,” says Evnin. “We are in business to go out of business and, thanks entirely to a growing network of thousands of supporters and generous donors, we will press forward until a cure is found.
The Foundation’s collaborative approach is guided by a world-class Scientific Advisory Board and is empowering scientists from leading institutions to work together to develop an understanding of how scleroderma begins, how it progresses and what can be done to slow, halt or reverse the disease process.